Inclusion, equality and human rights are the issues we face. If you are interested in getting involved please contact us.
Our amazing team of, professionals, friends and families are committed to helping those of us who have different and more complex needs. We are passionate about rare disease advocacy.
We believe all people have the same rights even if they are unable to speak up for themselves and we place great importance on getting to know how a person sees the world so that we can support them in the best way they need and that makes them feel heard, cared for and valued. We have been touched by cdkl5 deficiency disorder, but also extend assistance to other rare disease carriers. Our nonprofit organization is committed to serving the community in the ways we know best. Think you would be a good fit?
We've consistently grown since then, all thanks to the helping hands of this amazing community!
Be a voice for those with rare disease. Find a cure for genetic disorders. Allow this experience to make us all better people.